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The NMDP Advisory Group on Barriers to Transplant (AGBT) Update

The Advisory Group on Barriers to Transplant (AGBT) recently met for a full day during the BMT Tandem Meetings this past February in Salt Lake City, Utah. This group of accomplished and influential national leaders serves the NMDP Board of Directors by addressing system issues that could be improved through the collaborative efforts of the transplant provider and health insurance communities.  

Explore what the AGBT is working on >

Conference Updates

This year’s National Health Policy Conference held in Washington, D.C. by America’s Health Insurance Plans was an event for the ages! The conference featured speakers and panelists well-known and influential in the health industry, including the HHS Secretary Alex Azar, FDA commissioner Scott Gottlieb, former CMS Director and IHI President Don Berwick, and many others.  

Read more about the National Health Policy Conference >

CAR-T Affordability and Access Alert Issued by ICER in Recent Report

The Institute for Clinical and Economic Review (ICER) recently released a summary report analyzing the clinical and cost-effective benefit of two emerging CAR-T therapies approved by the FDA in 2017:  tisagenlecleucel (Novartis) and axicabtagene ciloleucel (Kite/Gilead). The main conclusions of the report include a “net health benefit compared to standard chemoimmunotherapy” as well as both therapies having been determined to be “cost-effective in the long term for the specified indications (adults with non-Hodgkin lymphoma and pediatric patients with B-cell acute lymphoblastic leukemia (B-ALL)."

Read more about ICER's CAR-T Affordability Report

Meet Roman

Roman has a rare disease called Shwachman-Diamond syndrome. As a result of the disease, Roman has a weakened immune system—and something as common as a cold could be deadly. A blood stem cell transplant from a genetically matched donor is his only hope to fight his life-threatening disease.

Learn about Roman's journey to find a match


Patient Support Center

The Be The Match® Patient Support Center provides support, information and resources for transplant patients, caregivers and families.

We are here to help your patients get reliable, easy-to-understand information from diagnosis through survivorship. We are available to listen, answer questions, and help your patients and their caregivers find resources. All of our support programs and educational resources are free.

Explore the Patient Support Center >

Education Opportunities

Upcoming Conference: Timely Referrals Presentation at OptumHealth Education Conference

Dr. Linda Burns, Vice President and Medical Director for the National Marrow Donor Program, will be speaking at the OptumHealth Education Conference “Transplantation: Essentials of Oncology, Solid Organ and Blood/Marrow Transplant Management for the Health Care Team” to be held at The Scott Resort & Spa in Scottsdale, Ariz. on April 15-16.

Learn more about the OptumHealth Conference >

Live Webinar: MDS in Older Adults: Treatment Options and Support Strategies

In this free continuing education webinar a physician and nurse practitioner will present current research and case examples to illustrate treatment options and common experiences for older patients with MDS and their families.

Tuesday, May 8th: 12:00 - 1:15 p.m. CDT

Register now >

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